“The Lucky Few” is a phrase taken from Heather Avis’ book, The Lucky Few: Finding God’s Best in the Most Unlikely Places. It has quickly become the descriptor of choice for those who have a family member who has Down syndrome. For World Down Syndrome Day (3/21) this year, I asked parents to tell me … More Why we are the “The Lucky Few”
When you’re a parent, family member, or friend of someone with a disability, it’s impossible to not hear about inclusion. Even if you don’t know anyone with a disability, odds are you may have heard about the daily struggle those with disabilities face to just be seen as equal members of society. We talk about … More What Does Disability Inclusion Look Like?
As the holidays approach, and family starts asking for Christmas lists, the question of what toys are most beneficial for Hannah comes to mind. This year, I decided to ask her occupational therapist, as well as her speech and language therapist which toys they felt would be most beneficial for her age group. I received … More Therapist Recommended Gifts for Toddlers with Down Syndrome
“Take your time, but don’t wait too long if you decide you want to terminate.” That’s what I was told when Hannah, who we had already been told had a high likelihood of having Down syndrome, was diagnosed with hydrops fetalis at 12 weeks. I was all too familiar with the grim odds a baby … More End Genocide, Not Down Syndrome
How do I have an 18 month old? I can’t believe how quickly time has gone! Since 18 months is a BIG deal, this is going to be a BIG blog post! I’ll split it up into different categories to hopefully make it easier to get through. I’ll go ahead and put a summary up … More ~18 Month Update~