When you’re a parent, family member, or friend of someone with a disability, it’s impossible to not hear about inclusion. Even if you don’t know anyone with a disability, odds are you may have heard about the daily struggle those with disabilities face to just be seen as equal members of society. We talk about … More What Does Disability Inclusion Look Like?
The organization I’ve chosen to highlight for the month of July is the Down Syndrome Diagnosis Network (DSDN). This is one of the first organizations I came across after we were told Wyatt more than likely had Down syndrome. The mission of Down Syndrome Diagnosis Network (DSDN) is to connect, support and provide accurate information … More Down Syndrome Diagnosis Network
Hannah saw her gastroenterologist today. We were overdue for an appointment anyway, but urology is also very keen on getting her bowel issues figured out since constipation can be a key factor in UTIs. Hannah has struggled with constipation pretty much since she was born. She has been on Miralax and Senna since she was … More ~GI Update~
I’ve spent a lot of time thinking about what I needed to hear after we received our prenatal diagnosis. I didn’t know anyone who had a child with Down syndrome at the time, so I had no one who actually knew what I was going through to speak encouragement into my life. My friends and … More Advice for Parents who Just Received a Prenatal Diagnosis
Being the mama of a child with Down syndrome is hard. I truly believe we are part of, “the lucky few,” and I wouldn’t change Hannah for anything, but we will face challenges most other moms never will. We teach our children to crawl, when most kids are walking. We teach our children to say … More Having a Child with Down Syndrome is hard, but God…