If you’re like me, you follow a lot of national Down syndrome and advocacy organizations. It’s so great when we see efforts to promote a more inclusive environment for children of differing abilities across the country and the world. Too often though, I think we forget to advocate for inclusion in our own back yards; … More Fighting for Local Inclusion
Busy, busy, busy. That is the best word to describe our lives lately! We are going through a lot of changes and transitions as a result of Hannah’s recent appointment with the Thomas Center. For those who don’t know, the Thomas Center is Cincinnati Children’s center for children who have Down syndrome. They have a … More 2 Year Update and Thomas Center Visit
“The Lucky Few” is a phrase taken from Heather Avis’ book, The Lucky Few: Finding God’s Best in the Most Unlikely Places. It has quickly become the descriptor of choice for those who have a family member who has Down syndrome. For World Down Syndrome Day (3/21) this year, I asked parents to tell me … More Why we are the “The Lucky Few”
It was March 7th, 2016. I had arrived at Riverside Methodist Hospital in Columbus, Ohio early that morning. I checked in, answered all of the nurse’s questions, and settled into my hospital room. The hospital room where I would deliver my stillborn baby. After several hours, Wyatt was born. He was quickly taken away so … More When my Nurse Held my Stillborn Baby
When you’re a parent, family member, or friend of someone with a disability, it’s impossible to not hear about inclusion. Even if you don’t know anyone with a disability, odds are you may have heard about the daily struggle those with disabilities face to just be seen as equal members of society. We talk about … More What Does Disability Inclusion Look Like?