“The Lucky Few” is a phrase taken from Heather Avis’ book, The Lucky Few: Finding God’s Best in the Most Unlikely Places. It has quickly become the descriptor of choice for those who have a family member who has Down syndrome. For World Down Syndrome Day (3/21) this year, I asked parents to tell me … More Why we are the “The Lucky Few”
It was March 7th, 2016. I had arrived at Riverside Methodist Hospital in Columbus, Ohio early that morning. I checked in, answered all of the nurse’s questions, and settled into my hospital room. The hospital room where I would deliver my stillborn baby. After several hours, Wyatt was born. He was quickly taken away so … More When my Nurse Held my Stillborn Baby
When you’re a parent, family member, or friend of someone with a disability, it’s impossible to not hear about inclusion. Even if you don’t know anyone with a disability, odds are you may have heard about the daily struggle those with disabilities face to just be seen as equal members of society. We talk about … More What Does Disability Inclusion Look Like?
The organization I’ve chosen to highlight for the month of July is the Down Syndrome Diagnosis Network (DSDN). This is one of the first organizations I came across after we were told Wyatt more than likely had Down syndrome. The mission of Down Syndrome Diagnosis Network (DSDN) is to connect, support and provide accurate information … More Down Syndrome Diagnosis Network
Hannah saw her gastroenterologist today. We were overdue for an appointment anyway, but urology is also very keen on getting her bowel issues figured out since constipation can be a key factor in UTIs. Hannah has struggled with constipation pretty much since she was born. She has been on Miralax and Senna since she was … More ~GI Update~