“The Lucky Few” is a phrase taken from Heather Avis’ book, The Lucky Few: Finding God’s Best in the Most Unlikely Places. It has quickly become the descriptor of choice for those who have a family member who has Down syndrome. For World Down Syndrome Day (3/21) this year, I asked parents to tell me … More Why we are the “The Lucky Few”
When you’re a parent, family member, or friend of someone with a disability, it’s impossible to not hear about inclusion. Even if you don’t know anyone with a disability, odds are you may have heard about the daily struggle those with disabilities face to just be seen as equal members of society. We talk about … More What Does Disability Inclusion Look Like?
For everyone trying to defend New York by saying only babies who would either pass away, or who have already passed away will be affected, you are wrong. So very wrong. First, I have seen several people say that we must protect the rights of mothers to induce labor or have a D&C if their … More My Children Aren’t Your Excuse to Murder
I see the questions running through your head. The ones you want to ask, but are afraid will come across as rude or nosy. Maybe you can’t tell she has Down syndrome, so you’re wondering why my almost 18 month old isn’t walking or even really standing. Maybe you do notice she has Down syndrome … More It’s OK to Ask About my Daughter with Down Syndrome
Hannah saw her gastroenterologist today. We were overdue for an appointment anyway, but urology is also very keen on getting her bowel issues figured out since constipation can be a key factor in UTIs. Hannah has struggled with constipation pretty much since she was born. She has been on Miralax and Senna since she was … More ~GI Update~