~GI Update~

Hannah saw her gastroenterologist today. We were overdue for an appointment anyway, but urology is also very keen on getting her bowel issues figured out since constipation can be a key factor in UTIs. Hannah has struggled with constipation pretty much since she was born. She has been on Miralax and Senna since she was … More ~GI Update~

~Urology Update~

We’ve added another specialty to our list. Hannah had her first appointment with urology on June 7th. The urologist’s opinion was that her E. Coli bacteremia¬†could¬†have come from the UTI. He said the oral antibiotics could have wiped out the E. Coli from her urine, but may not have been strong enough to wipe it … More ~Urology Update~

From SC to the ED

We went on our second family vacation with Hannah a few weeks ago. We ventured to Myrtle Beach, South Carolina and stopped in Gatlinburg/Pigeon Forge, Tennessee (a family favorite) on our way back home. We had such a great time, and were reminded yet again, that an extra chromosome changes very little. It was also … More From SC to the ED