~Urology Update~

We’ve added another specialty to our list. Hannah had her first appointment with urology on June 7th. The urologist’s opinion was that her E. Coli bacteremia¬†could¬†have come from the UTI. He said the oral antibiotics could have wiped out the E. Coli from her urine, but may not have been strong enough to wipe it … More ~Urology Update~

~Cardiology Update~

With Hannah seeing so many specialists and receiving so many therapies now, I realized my monthly updates were going to be way too long. I’m going to start doing health updates after our visits with each one of her specialists. This will make it easier for y’all to keep up with how she is doing, … More ~Cardiology Update~

From SC to the ED

We went on our second family vacation with Hannah a few weeks ago. We ventured to Myrtle Beach, South Carolina and stopped in Gatlinburg/Pigeon Forge, Tennessee (a family favorite) on our way back home. We had such a great time, and were reminded yet again, that an extra chromosome changes very little. It was also … More From SC to the ED