It’s OK to Ask About my Daughter with Down Syndrome

I see the questions running through your head. The ones you want to ask, but are afraid will come across as rude or nosy. Maybe you can’t tell she has Down syndrome, so you’re wondering why my almost 18 month old isn’t walking or even really standing. Maybe you do notice she has Down syndrome … More It’s OK to Ask About my Daughter with Down Syndrome

~GI Update~

Hannah saw her gastroenterologist today. We were overdue for an appointment anyway, but urology is also very keen on getting her bowel issues figured out since constipation can be a key factor in UTIs. Hannah has struggled with constipation pretty much since she was born. She has been on Miralax and Senna since she was … More ~GI Update~

~Urology Update~

We’ve added another specialty to our list. Hannah had her first appointment with urology on June 7th. The urologist’s opinion was that her E. Coli bacteremia¬†could¬†have come from the UTI. He said the oral antibiotics could have wiped out the E. Coli from her urine, but may not have been strong enough to wipe it … More ~Urology Update~

~Cardiology Update~

With Hannah seeing so many specialists and receiving so many therapies now, I realized my monthly updates were going to be way too long. I’m going to start doing health updates after our visits with each one of her specialists. This will make it easier for y’all to keep up with how she is doing, … More ~Cardiology Update~

From SC to the ED

We went on our second family vacation with Hannah a few weeks ago. We ventured to Myrtle Beach, South Carolina and stopped in Gatlinburg/Pigeon Forge, Tennessee (a family favorite) on our way back home. We had such a great time, and were reminded yet again, that an extra chromosome changes very little. It was also … More From SC to the ED